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LATEST EFGC NEWS

Eisai Announces FDA Approval of New Indication for Primary Generalized Tonic-Clonic (PGTC) Seizures in Patients with Epilepsy Age 12 and Older

Eisai Inc. announced on June 22nd, 2015, that the U.S. Food and Drug Administration (FDA) has approved FYCOMPA® (perampanel) CIII for adjunctive therapy in the treatment of primary generalized tonic-clonic (PGTC) seizures in patients age 12 and older. FYCOMPA, the first and only FDA-approved non-competitive AMPA receptor antagonist, was initially approved in October 2012 as adjunctive treatment for partial-onset seizures, with or without secondarily generalized seizures, in patients with epilepsy age 12 and older.

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Epilepsy Foundation Funding FY2016

On Friday, April 3, 2015, Illinois Governor Bruce Rauner unexpectedly suspended $26 million in social services and public health care grants. This included 100% of the state’s epilepsy funding for the rest of the 2015 fiscal year. Through our advocacy efforts, however, and with the help of supporters like you, we let government officials know how dangerous this is to the epilepsy community and Governor Rauner restored the 2015 budget cut. BUT WE ARE NOT DONE.

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Illinois Medical Cannabis Patient Summit set for June 6th

Join us on Saturday, June 6th as we partner with Americans for Safe Access – Illinois to present the Illinois Medical Cannabis Patient Summit. This summit will provide education to Illinois residents regarding medical cannabis and its benefits, medicating with cannabis and how to participate in the Illinois Medical Cannabis Pilot Program. Additional information to help Veterans navigate the VHA system as a medical cannabis patient will be presented the same evening from 6:00pm until 8:30pm.

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Illinois Senate to Vote to Extend Medical Marijuana Bill

llinois’ medical marijuana law went into effect January 1, 2014, but so far, not a single patient has received treatment under the pilot program. What’s happening? And with us so far into the test period and not generating any data, how will we know that the program is effective?

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Epilepsy state funding REINSTATED FOR FY2015

Our funding has been restored! Thank you so much for your support and advocacy these past few weeks. We are so thankful to have such an actively enthusiastic community.

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A Powerful Partnership that Led to a National Movement: Our CEO Explains Why Studio E is So Special

I always knew my daughter was special; what dad doesn’t think that? But when she was diagnosed with epilepsy at 13, she proved how resilient she really was. Her ability to overcome adversity makes me not only proud as a father, but also committed to helping others who live with epilepsy.

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March 26 is Illinois Epilepsy Advocacy Day – join us and let your voice be heard!

On March 26th we will head on down to Springfield to advocate for people impacted by epilepsy. Currently, the proposed Illinois budget will cut all funding for epilepsy programs, and we need to let our State Representatives know how devastating this can be. We will be partnering with the Epilepsy Foundation affiliates of Rockford and Southern Illinois, as well as the Danny Did Foundation and will work as one to address the need for programs and services to be provided for people with epilepsy, their families, and friends.  

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