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‘Microlesions’ in epilepsy discovered by novel technique

Using an innovative technique combining genetic analysis and mathematical modeling with some basic sleuthing, researchers have identified previously undescribed microlesions in brain tissue from epileptic patients. The millimeter-sized abnormalities may explain why areas of the brain that appear normal can produce severe seizures in many children and adults with epilepsy.  The findings, by researchers at […]

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Crystal Lake resident hopes to ‘cap the copay’ on high-price specialty drugs

Lisa Thomas is hoping there is a cure for the cost to cure. Thomas, whose 16-year-old son Ryan has epilepsy that causes seizures, takes less than two months to blow past the family’s annual $3,000 deductible because of the high copay costs for her son’s medication. She said it’s not unusual to hit the $10,000 […]

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Three Studies Shed New Light on the Effectiveness of Cannabis in Epilepsy

In advance of the American Epilepsy Society’s (AES) Annual Meeting in December, the organization has offered highlights of groundbreaking research being studied at a number of institutions regarding the effectiveness of cannibidiol (CBD) and its derivatives as a viable treatment for people with epilepsy. Read more…

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333 Patient Groups Join Together to Ask HHS Secretary Burwell to Reduce Barriers to Care in Qualified Health Plans

Three-hundred-and-thirty-three patient groups from around the country have signed onto a letter to Secretary of Health and Human Services (HHS) Sylvia Mathews Burwell calling for immediate measures to reduce barriers to care for patients who have purchased policies through the Health Insurance Marketplace (the “exchanges”). The letter comes as some patients with chronic conditions have […]

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Governor Pat Quinn Signs the Amendment on the Medical Marijuana Law

On July 20, 2014 SB 2636, the medical marijuana law adding epilepsy as a debilitating medical condition was signed by IL Governor Pat Quinn. This amendment includes epilepsy as one of the conditions for which medical marijuana may be prescribed, and that pediatric intractable cases of epilepsy may be permitted to use cannabis oil in the treatment […]

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U.S. Department of Defense Allocates $7.5 million to Epilepsy Research

On July 17, 2014, the U.S. Department of Defense announced that it will allocate $7.5 million to epilepsy research due to the alarming increase of people diagnosed with epilepsy because of Traumatic Brain Injuries sustained in the wars in Iraq and Afghanistan since 2006. This initiative was led by Illinois Senator Dick Durbin and Susan […]

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2014 Scholarship Winners

The 2014 recipients of the Jim Davies Scholarship were announced at the Epilepsy Foundation of Greater Chicago’s June Board of Directors Meeting. This scholarship is awarded annually in the amount of $1,000 to individuals with epilepsy who will be incoming freshmen to a college or vocational/technical school and will be a full-time student for the 2014/2015 […]

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Neurosurgeons implant new type of electrical stimulator to control seizures

On June 18, neurosurgeons at the University of Alabama at Birmingham implanted a new type of electrical stimulator to control seizures in patients with difficult-to-control epilepsy. It marked the first time in the Southeast the RNS system by NeuroPace had been implanted since the device gained FDA approval in November 2013. The first patient was […]

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Early treatment with AED reduces duration of febrile seizures

New research shows that children with febrile status epilepticus (FSE) who receive earlier treatment with antiepileptic drugs (AEDs) experience a reduction in the duration of the seizure. The study published in Epilepsia, a journal of the International League Against Epilepsy (ILAE), suggests that a standard Emergency Medical Services (EMS) treatment protocol for FSE is needed in […]

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FDA okays medical device to treat epilepsy

The U.S. Food and Drug Administration has approved a device to help reduce the frequency of seizures in epilepsy patients who have not responded well to medications in the past. Read more…

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