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LATEST EFGC NEWS

Children with Epilepsy Need an Emergency Plan for School

Children with epilepsy should have a plan in place at school for how best to respond to medical emergencies. The American Academy of Pediatrics (AAP) has released guidance suggesting prescribing providers, families, and schools collaborate develop such plans detailing the use of seizure rescue medications.

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Chicago Wolves Host Epilepsy Awareness Night on December 19

The condition doesn’t play favorites: People are diagnosed with epilepsy at any age and it can be triggered by a wide range of factors. The Chicago Wolves are determined to broaden the conversation of this condition and to raise funds to cure it.

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One Man’s Desperate Attempt to Cure his Son’s Epilepsy – with Weed

The hospital pharmacist slid three bottles of pills across the counter, gave my wife a form to sign, and reminded her that this was not the corner drugstore. The pharmacy knew how many pills had been dispensed, he said; it would know how many had been consumed; and it would expect her to return the unused pills before she left the country. The pharmacist made it clear that he was not only in touch with our doctor but with the company supplying the medication. They would know if she broke the rules.

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Save people, not numbers: the 2016 Illinois budget

On September 24, 2015, the Illinois State Senate was able to pass SB 2046, which gives the governor authority to resume payments to health and human services organizations, including the Epilepsy Foundation of Greater Chicago. As Illinois legislators and Governor Rauner continue to battle over the state budget, this is clearly a step in the right direction for non-profit organizations who rely so heavily on government funding–it will help prevent the shutdown of vital services provided by the Epilepsy of Greater Chicago to the 130,000 people with epilepsy living within the greater Chicagoland area.

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PhRMA and the Epilepsy Foundation report more than 400 medicines in development to treat neurological disorders

America’s biopharmaceutical research companies are currently developing 420 medicines for patients suffering from neurological disorders, including epilepsy, Alzheimer’s disease, multiple sclerosis (MS) and Parkinson’s disease. As highlighted in a new report from the Pharmaceutical Research and Manufacturers of America (PhRMA) and the Epilepsy Foundation, scientists around the globe are collaborating to find new or more effective treatments for patients with these complex disorders that attack the nervous system.

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Eisai Announces FDA Approval of New Indication for Primary Generalized Tonic-Clonic (PGTC) Seizures in Patients with Epilepsy Age 12 and Older

Eisai Inc. announced on June 22nd, 2015, that the U.S. Food and Drug Administration (FDA) has approved FYCOMPA® (perampanel) CIII for adjunctive therapy in the treatment of primary generalized tonic-clonic (PGTC) seizures in patients age 12 and older. FYCOMPA, the first and only FDA-approved non-competitive AMPA receptor antagonist, was initially approved in October 2012 as adjunctive treatment for partial-onset seizures, with or without secondarily generalized seizures, in patients with epilepsy age 12 and older.

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Illinois Medical Cannabis Patient Summit set for June 6th

Join us on Saturday, June 6th as we partner with Americans for Safe Access – Illinois to present the Illinois Medical Cannabis Patient Summit. This summit will provide education to Illinois residents regarding medical cannabis and its benefits, medicating with cannabis and how to participate in the Illinois Medical Cannabis Pilot Program. Additional information to help Veterans navigate the VHA system as a medical cannabis patient will be presented the same evening from 6:00pm until 8:30pm.

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