Each summer, the Epilepsy Foundation of Greater Chicago’s Camp Blackhawk gives its young participants an experience they won’t soon forget. For one week, these kids, ages 6-17, get to come together and enjoy all the fun activities and friendships that come with a trip to camp, while leaving behind various challenges epilepsy can bring to their daily lives. They are all surrounded–-some for the first time–-by dozens of other kids who know exactly what having epilepsy means. They don’t have to worry about what people would think if they had a seizure or if they will be excluded from activities just because they are different. At Camp Blackhawk, epilepsy is the norm.
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Individuals registered for Tag Days can pick up their canister, vest and tags at all three Savers locations on March 19, from 4PM-9PM. Registered participants who visit these Savers locations for packet pick-up are also encouraged to donate used clothing or household items. You can bring your clothing donations with you to the store. Participants who donate will receive a tax donation receipt and a 20% off coupon on any Savers purchase that night. Be sure to clean out those closets, get ready for spring and contribute to a great cause.
Surgery for epilepsy is usually seen as a last resort for patients when medications do not work, and it is often delayed for many years after the failure of drug treatment. Now a randomized, controlled trial suggests that surgery as soon as possible after the failure of two antiepileptic drugs is a significantly better approach than continued medical care.
The social networking service known as Twitter seems to have become a platform for derogatory comments about epilepsy and seizures, researchers say. In a study published in the February issue of Epilepsy and Behavior, Canadian researchers analyzed nearly 11,000 seizure-related “tweets” and deemed 41 percent of them as offensive. The study authors pointed out that the messages on this social networking service could reinforce negative perceptions of the neurological disorder.
Leading representatives of the American Epilepsy Society, American Academy of Neurology, and the Epilepsy Foundation today reported they have grave concerns about the implications and potential misuse of the anticonvulsant (AED) drug comparisons study recently released by the U.S. Agency for Health Research and Quality (AHRQ).
Sparking production of a hormone in the brain that people with epilepsy often lack could prevent debilitating seizures, University of Florida researchers have discovered.
A Chicago teenager’s dream of attending Super Bowl XLVI in Indianapolis is coming true thanks to Chicago Bears player. On Saturday Chicago Bears linebacker J.T. Thomas surprised 14-year-old Anthony Granberry, who is epileptic, with two tickets to the game at Lucas Oil Stadium. Granberry developed epilepsy at the age of 7 and has spent much of his time in the hospital. He met Thomas during a holiday party for youth.The Super Bowl will be Granberry’s first time going to a football game.The surprise marked the final stop for Thomas who was on a tour to raise awareness of epilepsy, a brain disorder that causes repeated seizures.Thomas also gave Granberry a scholarship grant to attend Camp Blackhawk, a week-long retreat for kids and teens with Epilepsy. The Camp is hosted by the Epilepsy Foundation of Greater Chicago.