Advocacy Action: State Leaders’ Education Initiative
Everyone’s voice deserves to be heard. The tendency for someone with a disability, including epilepsy, to not get the public’s attention on issues regarding their personal health can be quite common. The Advocacy Action Education Initiative is designed to train epilepsy advocates to successfully reach out to Illinois state legislators and make their presence known. Their ability to speak to needs of people with epilepsy and effectively share their personal stories so that local politicians understand how important it is to support the Foundation’s cause, is the backbone of Advocacy Action.
Participants of the Advocacy Action Education Initiative have a close connection to epilepsy. As parents of children with epilepsy, they have the passion and commitment to fight for the rights of those impacted by it. This program trains and educates parent advocates to meet with their state legislators to bring to the political table what the most important priorities are on the epilepsy agenda. Parents will take part in an annual two-day conference where they will be brought up to date on the latest issues impacting the epilepsy community. They will hear from medical experts, social workers and prominent local figures so that they have the knowledge to go into the political arena and spread the word about epilepsy and why it deserves much needed political support.
Parent Advocates Educated On:
- Relevant Political Issues
Current bills in front of the House and Senate that impact those with epilepsy
- The Legal Rights of Someone with Epilepsy
The Ins and Outs of the ADA, disability benefits, and discrimination issues
- Legislating Epilepsy
How to effectively get the attention of a local politician and use his/her power to take action on important issues within the epilepsy community.