Read their stories and share your own story.

Watch “Now I Know” Videos Filmed at the 2012 Consumer Conference

Published on November 27, 2012

This collection of “Now I Know” videos was filmed at the 2012 Epilepsy Foundation of Greater Chicago Consumer Conference, held on November 17, 2012 in Chicago, Illinois. These short videos were filmed using a laptop digital camera, and were completely unrehearsed. The collection shows the variety of experience among those living with epilepsy, and highlights […]

Sean

Published on October 26, 2011

Because I have suffered from epilepsy almost my whole life, I have always had somewhat of a problem of being depressed. Epilepsy has kept me from doing so many things that I have wanted to do throughout my life. I tried joining the military, but Uncle Sam said “No”. Then when I tried getting into […]

Noah

Noah

Published on March 21, 2011

Noah was 2.5 years old when he had his first seizure, a grand mal, on Thanksgiving Day 2003. Over the next few weeks he would have different types of seizures and after starting medication, he had hundreds of seizures a day. We found that the doctoral care we had at the time was not experienced […]

Richard

Richard

Published on March 21, 2011

My mom first noticed my seizure when I was about 2 years old because I would just stare out into space. The doctors at the time dismissed it. It was not until I was 12 years old that I had my first grand mal seizure. The doctors at the time thought it was pesudoseizures but […]

Tamara

Tamara

Published on March 21, 2011

My name is Tamara, and I have Epilepsy. Most times when I talk about my Epilepsy or seizures, people get freaked out, they get scared in their own sense. Whether it’s them cringing for my disease, not wanting to drive with me, or asking excessive questions about how awful it is; I get it almost […]

Josie

Josie

Published on March 18, 2011

Josephine (Josie) was born via C-Section on August 26, 2003, weighing 8 pounds exactly. A beautiful and energetic baby, Josie came into the world bright-eyed, engaged, and observant. She loved bright colors and books, music and movement. Josie developed normally until the age of 3 months, at which time she began having complex partial seizures. […]

Emmett

Emmett

Published on March 18, 2011

In June of 2006, Emmett was a normally developing 2 ½ year old little boy with speech delay. He was so well coordinated and had a smile that could brighten up any room. We had just come home from a weeklong vacation and I was getting my two boys ready for bed, we were reading […]